The burden of EPP & XLP is all-encompassing
The impact of phototoxic reactions and strict light avoidance can significantly interfere with patients' daily lives1
Previous studies have established the high burden of EPP and XLP, with profound impacts on physical, social, emotional, and overall well-being observed among patients living with these conditions.1,2
EPP and XLP can affect all aspects of life2
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The psychological toll of EPP and XLP extends across life stages
58%
of adolescents reported feeling isolated.2
61%
of adolescents reported feeling anxious.2
75%
of adults reported feeling sad.2
76%
of adults reported feeling lonely.2
Data are from the EPP Light Study of 164 adults and 33 adolescents (aged 12 to 18) with EPP or XLP.2
